
India has some
40 to 80 million persons with disability. But low literacy, few jobs
and widespread social stigma are making disabled people among the most
excluded in India. Children with disabilites are less likely to be in
school, disabled adults are more likely to be unemployed, and families
with a disabled member are often worse off than average. With better
education and more access to jobs, people with disabilities can become
an integral part of society, as well as help generate higher economic
growth that will benefit the country as a whole.
In the years to
come, the number of disabled people in India is expected to rise
sharply as age related disabilities grow and traffic accidents
increase. This is borne out by the fact that internationally, the
highest reported disability rates are in OECD countries.
India
has a growing disability rights movement and one of the more
progressive policy frameworks in the developing world. But, a lot more
needs to be done in implementation and “getting the basics right”.
Newer thinking and better coordination of programs is called for.
Preventive health programs need to be deepened and all children
screened at a young age. People with disabilities need to be better
integrated into society by overcoming stigma; disabled adults need to
be empowered with employable skills; and the private sector needs to be
encouraged to employ them. The scale of disability in India needs to be
better understand by improving the measurement of disability. Most
importantly,persons with disabilities should themselves be made active
participants in the development process.
Chapter 1: Socio-Economic Profile of Persons with DisabilitiesLarge
numbers of children with disabilities remain out of school. They are 4
to 5 times less likely to be in school than SC/ST children. If they do
stay in school, they rarely progress beyond primary levels. This leads
to lower employment and incomes.
There is a need for a more
accurate data collection. Harmonizing definitions of disability in
government surveys and the census would be a good beginning.
Chapter 2: AttitudesNegative
attitudes held by the families of the disabled, and often the disabled
themselves, deter disabled persons from taking an active part in the
family, community or workforce. Those suffering from mental illness or
mental retardation face the worst stigma and are subject to severe
social exclusion.
People with disabilities are considered
ineligible to marry those without disabilities unless “adjusted” by
high dowry. Disabled girls are usually married to older men, leading to
a higher incidence of widowhood. Showcasing success stories of people
with disabilities can challenge these deep rooted negative perceptions.
Chapter 3: HealthA
large number of disabilities in India are preventable, including those
arising from medical issues during birth, maternal conditions,
malnutrition, as well as accidents and injuries. However, the health
sector is yet to react more proactively to disability, especially in
the rural areas.
There is stark regional disparity. In general,
states that lag in health services also lag in caring for the disabled.
Those disabled from birth, women, and ST/SC/OBC are less likely to seek
health care. Despite years of public intervention, only a few disabled
people have access to aids and appliances.
Chapter 4: EducationWhile
the Sarva Shiksha Abhiyan (SSA)has made a concerted affort to promote
the inclusion of children with special needs, the system faces
challenges in identifying these children and responding to their needs.
Only around 1% of funds under SSA are spent on inclusive education.
And, the budget for educating children with mild to moderate
disabilities in regular school settings has not increased
commensurately since the focus on inclusive education began in the
1970s.
Coordination between the Ministries of Human Resource
Development and Social Justice and Empowerment, the Rehabilitation
Council of India and the general teacher training system needs to be
improved. State-wise strategies on education for children with special
needs need to be devised.
Chapter 5: EmploymentEven
though many disabled adults are capable of productive work, disabled
adults have far lower employment rates than the general population. In
fact, employment of people with disability actually fell from 43% in
1991 to 38% in 2002, despite the country's economic growth. In the
public sector, despite a 3% reservation since 2003, only 10% of posts
have been identified as “suitable”. The quota policy is also covers
just three types of disability – locomotor, hearing and visual.
The
situation is far worse in the private sector. The sector has few
incentives for hiring disabled people. In the late 1990s, employment of
people with disability among large private firms was only 0.3% of their
workforce. Among multinational companies, this was a mere 0.05%.
Financial assistance too has hardly reached those in need. The National
Handicapped Finance and Development Corporation disbursed assistance to
less than 20,000 disabled persons between 1997 and 2002.
Chapter 6: Social ProtectionThough
centrally sponsored anti-poverty programmes have reservations for
people with disabilities, the numbers who have benefited are well below
the minimum laid down. The new National Rural Employment Guarantee Act
has dropped reservations for the disabled entirely, though some states
(e.g. AP) are making efforts to include disabled people. Few people
with disabilites are aware of such programs and many states lack focus
on social protection for PWD.
While the presence of self-help
groups is encouraging, an ambitious Social Security Bill for the
unorganised sector could deliver real benefits.
Chapter 7: Policies and InstitutionsDespite
having one of the most progressive policy frameworks for persons with
disabilities, India falls short in implementation. The Persons With
Disabilities Act of 1995 is the cornerstone of India’s policy
framework, but its enforcement faces many challenges.
For one, the Ministry of Social Justice and Empowerment - the nodal agency for disability- is perennially short of resources.
There
is therefore a need to strengthen public-private partnerships with
NGOs. However, there are concerns about weak monitoring mechanisms and
accountability of public funds. And, persons with disability need to be
treated more like active participants than clients. There is thus an
urgent need for reforms at all levels.
Chapter 8: AccessPhysical
accessibility in buildings, transportation and the like, as well as
assess to services is key for persons with disability. Guidelines
already exist for buildings that are friendly for both the disabled and
the elderly. But these guidelines need to be adopted into building
bye-laws to make them legally binding.